Had some really good news on Friday- my hip operation can be postponed! Woohoo! my CT scan showed that I have marked shallowness of both hip sockets so I definitely have hip dysplasia (& we already know I have some damaged cartilage in my left hip), but the bones are all looking nice & healthy with no signs of deterioration. so I agreed to wait till my hips start to struggle as the op would damage soft tissues that may not heal thanks to my EDS so I may end up with more pain than I do now. so I’m just gonna carry on as usual as I can tolerate the pain perfectly fine- most of my other pain (eg the sciatica and bicipial tendonitis) is far worse so this is nothing in comparison! I was mainly worried that the pain was coming from damage to the bony structures of my hip thanks to the 29+years walking on dysplastic hips (that slide around in the sockets) and my assault in late 2009, so I feel soooooo reassured! Was mildly annoyed at having to wait 3 hours for the appointment but there’s no point getting upset and angry about it as it’s just what happens in hospitals- every appointment over-runs a little and by the end of the afternoon the additional time adds up. Many people were giving the receptionists and consultants grief about it but there was really nothing that they could have done about it. at least those around me saw the funny side to the situation (as did i) and we all got really excited when the consultant’s doors opened! I’m sure the consultants were relieved that they got some happy patients for once!
Had a great assessment with the independent living team about either getting a carer from social services or the personal budget so I can hire a PA. I’d probably go for the latter as it’s much more flexible so If I need to re-arrange my care for a different day (eg if I’m in London for an appointment) I can do. And they don’t do meal prep and I really need this so I can hire someone to do it for me, in addition to other tasks. Got a mighty huge form to fill out and have to get the go ahead from my co-oordinator lady but it’s all looking really hopeful!